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June 12, 2008
Hello,
I am happy to report that we are home! They released her yesterday with her pic line in place. The pic line allows us to administer her antibiotics at home since her mediport has been removed. We are doing meds 4x's a day and it runs for 1/2 hour so it is not too bad. We should be done next Wednesday and then we go back to Children's on Thursday for more chemo and they will also remove the pic line. Dermatology is still trying to figure out the rash. They have her on a topical steroid cream that will hopefully help.
Overall her hospital stay was not so bad! The doctors and nursing staff were great! It also helped that Malena was having a good time. She really is so much fun to be around. When we arrived at the hospital last week we walked into her room and she exclaimed, "Wow! This is so pretty!" Nothing but the best Malena! It's a 5 star hoSPAtal!
Have a great weekend!
June 9, 2008
Hi,
I am sitting in Malena’s hospital room at Children’s as I write this update. She was admitted last Wednesday with a fever and they discovered a blood infection. At first we thought we would be able to return home after 48 hours with a negative culture but that has not happened. Since her cultures have all been positive it has been determined by her oncologist that the infection is “stuck” to her mediport and that it needs to be removed. Malena has been added to the surgery list for today. They could come in 5 minutes to take her or 5 hours. Meanwhile she has to fast until after surgery. UGH!!!!
After the mediport is removed she has to have antibiotics administered through an IV until her cultures come back negative for 48 hours. Then they will insert a pic line in her arm so that we can finish the meds at home. But the fun doesn’t stop there.... Her oncologist is going to do a spinal tap to make sure the spinal meningitis has not come back. The bacteria that they found in her blood are the same as the bacteria they found in her when she did have spinal meningitis back in august, 2006.
I can’t even guess as to when she will be released. I am hoping for Thursday but I am not counting on it.
To look at her and be with her you would never know that she is sick. She is taking all this in stride. She is excited to have her mediport removed. I should mention that the doctors don’t think it is necessary to have a new mediport put in because she is only 5 months from the end of treatment. She will receive her chemo and blood draws through her veins. If all goes smoothly I think that is about 15-20 more “pokes.”
Thanks for thinking of her!
Love, Suzanne
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